It was a slightly longer day at Texas Oncology today. I checked in with the Pharmacy to pick up the anti nausea pills (4 different ones) and antibiotics, while Adrian went to the infusion room. The pharmacy told me that the insurance company has been giving them the run around about pre authorizing a prescription for nausea medicine. It took a few more phone calls from them and myself to finally get it authorized. We have definitely seen much more how the insurance companies work after Adrian was diagnosed. Sometimes its great, sometimes not so good...
What also is amazing, is that with chemo comes a bunch of prescriptions to be taken on different times of the day, with and with out certain food, on different days and so on. Now, mainly the patients at Texas oncology are older people.. how on earth can they keep all the pills apart and know when and not to take them??
Adrian felt good this morning - normal, no side effects from yesterday at all.
He was hooked up to iv from 9.30 am - 1.30 pm today and still has an iv bag (chemo) attached to him right now. It pumps out 24 ml per hour and it will stay connected until tomorrow morning.
The nurse Rachel, who by the way is super cool, said that he might feel more side effects from the drugs he received today.
I left Aj there with his Family Guy DVD and returned with lunch later on. When I asked him how he was feeling the answer was "not as good as yesterday".
We got home around 2pm and he went to bed with the pump/bag and has been there since then. He had dinner a couple of hours ago and he felt so-so then. Right now he says he can "feel" the poison going into his veins. URGHH! can't even begin to imagine what that feels like.
But the Xbox is on and game is rolling so he is still holding up really well!!!
One side effect of the Ifosfamide that is VERY RARE is that it can affect your head (NOT permanent!)... Now this is something that Dr. H said she has seen in two people in 15 years. IF it happens, there is medicine that will help. It can mess with his head, thoughts and stuff. If he acts weird I should call the office.
If it happens, he wouldn't know about it himself, I would be the one who could tell.
I have cameras and recorders ready!!! I am telling you, if he is going to go weird on me - there will be proof. He said that nothing he says or does in the next 24 hours can be used against him.
"Sure". Lets see what comes out of his mouth first :) - the tapes will be rolling!
(Dr. H said that this is RARE, they just have to mention it so we know about it)
He might have a shock of his life time when he wakes up tomorrow morning and doesn't know who I am. :) LOL
I could cook up some story and see how long I can get away with it. :)
(I think we are on the safe side though.... he has had the drugs since 1.30 pm today and there are no signs of an alter ego)
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