We forgot to get the lab results yesterday so Amira faxed them today.
Type Adrian normal range
WBC (white blood cell count) 4.3 K/UL (4.0 - 11.0)
RBC (red blood cell) 4.48 M/UL (4.50 - 6.0)
Platelet 330 K/UL (140 - 440)
Lactate Dehydrogenase 450 I/UL (313 - 618)
Its the WBC that goes down when the immune system is low and it has gone down 0.2 since we went to see Dr. H 2 weeks ago.
I compared the labs to when he was sick in February and right before he started his very first chemo his WBC was 1.6 K/UL.
It has been as low as 1.0 - right after chemo, before the Neulasta (shot to boost WBC) started kicking in. That is the horrible shot that gives terrible bone ache. It works like a charm, for what it is supposed to do - artificially boost white blood cells. It puts the bone marrow to work to create new cells and when they are working that hard, the bones hurt. That and the numbness (from Vincristine) in the fingers were really bad side effects.
Looking at all the other levels, everything else seems pretty normal (there are two pages full of different things the test) I told Aj that this must be a sign of his body being very strong! :)
Other than that he is feeling great and is working and playing Super Mario Wii just like normal :) :)
I called MD Anderson today to see if they could find volunteer in their register that we could talk to. Remember that we spoke to Erik in the beginning, who had the same DX as Aj (he did not have hystiocytes). Since this lymphoma is rare MD Anderson only had one person - Eric, in their volunteer register, who we could talk to. He had 6 cycles of CHOP and went into remission and that is just over 2 years ago now.
I asked them to find a male, 30-40 years old with an Non Hodgkins Lymphoma that has had an Auto Transplant. Just to see how he experienced the whole thing and how he feels now. I know each case is unique, but still.
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