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Monday, September 20, 2010

September 20, 2010 Uncle Oliver left

The girls knew Adrian was getting the power port back in his chest today. Oliver and I took them to school and then went home and picked up Aj. Went down to Seton and dropped Adrian off by the 'day surgery' .

He texted me and told me that they had pricked him 3 times in the arm for the IV. 3 times!!! I could understand if it was on me, because my veins disappear as soon as I park the car anywhere near a hospital. But Aj's, his are a drug addict's dream, they are popping out like they are going to burst :) everywhere :).

The procedure to put the port in was very short, I think he was under for about 45 min. After he had woken up, the nurse called me and said he was doing great, sitting up drinking Ginger Ale. So Oliver and I went and picked him up on the way to the airport. Aj was doing great, said he felt a little sore where they put it in, that was about it.

The little tubes that you see hanging won't be there all the time. They will take them away tomorrow after chemo. I will take another picture and show you what it looks like when they are gone. The port is completely under his skin.
The reason the tubes are there, is because they schedule the insertion of the port the day before chemo so that they can put the needle in while he is under.

I tried to find clinical trials this morning. We heard about one from Dr. Fayad, but it wasn't recruiting anymore. I emailed the company last week and this morning I called them to see if I could get them to take on Adrian. The trial is called SGN-35 and has had very good respond. It would take away the nausea, hair loss and numbness in fingers, actually most side effects. But it didn't matter what I said, they wouldn't take him on.
Even called Dr. Fayad to see if there were any another trials at MD Anderson, but the answer was no.

Tomorrow Adrian will get ICE in the morning. That is the name of the chemo he will get. I will get back with more information about it tomorrow.

Adrian's brother left today. Its nice to see them spend time together because they really enjoy each other. Especially yelling at the TV when college football is on. :) The girls said they would try not to cry when he left :) very cute.
All I can say is I am blessed to have Adrian's family as mine. They are all amazing.

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