WHAT A GAME!!!!

Wow!! USA - CANADA is hockey!! Even though USA played pretty bad, they somehow managed to get into over time! Very exciting!! Canada deserved the Gold, they were playing really well.

Today was yet another great day - Aj was a little tired from yesterday but we didn't do anything to hard today. Just chilled at home most of the day. Some of the hairs on his legs are falling off. But none on his head yet. Would be amazing if it doesn't. Just have to wait and see. 

I guess that is one of the hardest things now that the shock with the diagnoses is over, the unknown, the waiting game. 

We don't know if they will change treatment (until tomorrow), 

Will he need a bone marrow transplant, if so - when, 

How he is going to feel after the next chemo, wiped out like before or not so bad, 

How will it feel to have the port in the chest, will he feel it, 

Is he going to loose his hair? 

All these questions and only time will tell.  So again, baby steps - just one day at the time. :) I will keep you guys as informed as I can tomorrow, I know that you are just as eager as me to find out what the doctor has to say. 

I found a forum online, but not a whole lot of people that has exactly what Aj has been diagnosed with. I wrote in it and contacted two people that have Anaplastic large cell lymphoma but ALK -, but haven't heard back yet. I am going to write to the Lymphoma org. tomorrow night when I have the proper diagnoses on Aj. We said that we would wait and really really look into stuff until Dr. Fayad has said 'THIS is what you have" 

I did read in a book that you can't compare any Lymphomas that aren't the same, not even like the one like I mentioned above - that is ALK - rather than ALK + like Aj. So that is my goal to find people with the exact same diagnosis. 

But again, I want to make 100% sure that this is what he has. 

Tomorrow I hope we have some anwers!