Today we are waiting for the Chemo to start. They were supposed to come and do it first thing in the morning, but Aj has some fluids in his lunges and given full dose could increase the risk of pheumonia so they were debating if he should have half dose or whole dose. Dr. Beth Helerstedt is recommending full dose since he is so young that its the best for the treatment.
Its noon and the nurse Laura just came in to give Aj some valium to suppress the rigors - he is sleeping now, hopefully for a while.
She said that the pharmacy are mixing up the full dose, so I guess sooner rather than later, we will have completed the first dose of treatment.
Definitely a lot to digest that Aj is having chemo, but its the cure and it will take care of business so bring it on!
His white blood cell count is almost at a critical level today, not good at all and they are keeping a close eye on that. The red are not as low. The whites are : 1.6 - normal being 6 - 10 (!!!)
Aj has been weak since yesterday, seemed like it took the little energy he had out of him when they kept him waiting for the bone scan and he couldn't eat or drink for a long time plus that he has some really bad rigors periods. They are now giving valium when he gets them and it almost seems like if we get it early enough before the rigors really break out - it controls it.
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