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Friday, February 19, 2010

New Hair Style

Not much to report today, Aj got the clippers out and cut his hair off. Girls didn't mind at all, I told them on the way home and they didn't even react when we got home, which was good.
We didn't go for a longer walk today, its been raining and muggy.
Aj says that he can feel the PICC line and its annoying, I can only imagine. Unless we can hope for some miracle that they do it in Houston, then I think we have to wait another week before they do the port. Seton is supposed to call me to schedule it. I will call them Monday if I haven't heard anything.
He sweated more than ever last night, first we thought maybe it was due to new sleep meds - Restoril, but I looked up the side effects and it has about 15 of them, but not one says sweating. Lymphoma does though, so its probably that. Its kind of a weird holding place right now, he has had the Chemo and his whites have gone down and we are just kind of trying to figure out every day if that is the worst he is going to feel in the whole cycle. But we will learn with time what ups and downs in this procedure is.

Oh, I went to the school this morning and I met two cancer survivors. Since the school - Trinity is fairly small everyone knows everyone and most Kinder mums knows what is going on. One Jen Davis (who's sister in law Laura helped us into T and Laura is a survivor too!) Anyway, Jen introduced me to a lady called JeanMarie and she said that her husband is a universal blood donor - he has this 'universal' blood cat. 0 positive. I don't actually know what Aj is but will find out on Monday- just to know. JM emailed me tonight and said that her husband is offering to be a donor if need be, he said just tell me when and where. - I know that Aj is going to probably use his own bone marrow and if not that probably Oliver's, but I didn't want to get into that discussion with her and just kind of went with the flow and said thank you. (I've learnt to do that, it saves time :) and I don't offend anyone)  Still what touches me into the spine is that a complete stranger emails me hours after meeting and says just tell me when and where and I'll be your bone marrow donor. I thought that was so touching...  I had goose bumps. Trinity has honestly been our blessing in the sky, they bring dinners Mo - Wed - Fri and today I went to pick up Chloe and there was a full meal plus another mom had done some grocery shopping and a whole bag full of little good things. Also they are all concerned and pay extra attention (secretly) to Chloe to make sure she is ok and they report back to me. Its just an amazing family to have here in Austin... I am almost a little overwhelmed with the help and support we are getting, I feel like I don't know how to thank them enough.

Still no fever in sight - 97.9 tonight - not sure I mentioned yesterday his weight was 153lbs.

Not a lot to update today, still one day at the time and I think these in between days there just isn't going to be a whole lot of new info. Very cool that I can upload the videos very easily from my iPhone :). There will be more of those!!

I have about 6 books to read so I am going to do that now.

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