This morning the nurse wanted to see him in regards of the pain in the shoulder and the swollen armpit. (when I say swollen, its minute just so you don't think its a big lump sticking out) Just to check it out. They wanted to rule out that it was a blood clot in the port, so they sent Aj for an ultra sound. It came back fine, no blood clot.
The nurse said he could have an infection but his blood work doesn't really show that, his whites are normal. So nothing really that jumps out. He had a very mild head ache tonight.
I think he has been working a lot. At least I can get him to work from bed for the rest of the week now, since he is having treatment tomorrow.
So yesterday we met a couple who are truly amazing. Christy & Matt. Adrian knows Matt a little bit from before - he is a builder and built a house on Cortona (where we had the empty lot) Christy is 37 years old and two years ago they went to Colorado to go skiing with family. When they get there she gets this banging head ache that gets worse and worse.
Long story short they go to the doctor who checks her out sends her to the hospital where they realize its serious and that she needs to get to Denver asap. The only thing is its a snow storm outside and the helicopter can't fly. She has a tumor the size of an orange in her head.
The manage to get the ambulance which the couldn't even close the door on, because of ice! She had a huge swelling in her head and thankfully one doctor that they called at MD Anderson told the paramedics to give her 4 different drugs before they started driving. That helped to drain the head/brain on fluids. The drive took 4 hours! If that doctor hadn't told them to give those drugs she wouldn't have made the trip.
They ended up in Houston Md Anderson when she could travel there from Denver and had 10 hour surgery. Nobody knows where this tumor comes from or how long its been there but probably years they say.
Christy has now had chemo and radiation for 2 years solid. Not so much radiation in the last year. The tumor is gone but there are cancer cells in her brain that they can't remove. The cells aren't doing anything right now so they keep monitoring her. She gets really wiped out from her chemo - she sleeps for 7-10 days and is not feeling great.
Matt, Christy and their daughter Dylan (4yrs old) are amazing. They are so positive and energy is on top. Nothing can get Christy down. Its so encouraging so see someone like her in her position and still, she finds positive thoughts every day all day. The doctors basically gave her 3 years to live when this all happened. but she is proof of that every case is unique and that statistics aren't always right. Like she said, even if there is a 2 % chance of something - she could be that 2%. Its true.
So, with all this bad stuff going on right now. When we come out the other end, we have made new friends and got closer to some of our old friends and then we can just celebrate! The cancer has brought us some amazing people, I wish we didn't need a disease to meet them. But it just makes us look forward to remission and being able to fully enjoy them! :):):)
Before chop tomorrow AJ is going to see Dr. H - she has been on vacation and she wants to catch up with him and see how things are going. Basically lab works and vitals :)
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