Quick recap - Adrian felt really well last week day 0 and 1, then it kind of just went downhill from there. Sores in his throat, very itchy rash on his head he became more tired and just felt out of it. His WBC has been down to 0 for a few days and today it finally took a turn and went up to 0.1.
Now, we know this is minute, but in cases like this - these little numbers makes a big difference.
I am hoping so badly, this is the turning point and he will start feeling better. Plus his body will grow some immune system to heal these sores in his throat so he can eat and get more energy.
His diet is pretty much, ice cream, soup, jello and spaghetti.
We all drove down yesterday, he had had a fever for a couple of days and they took him for a chest x-ray. The x-ray would show if he had an infection or not. Results came in negative today. Hurray!!!
The girls were so excited to see him too. I heard them in the car yesterday, they were going to try to seek out which doctor was the disguised one! How cute is that. They knew he wore a mask and he was on Adrian's floor... Poor nurses, probably thought the girls were weird the way they stared at them. :) - remember the letter Santa wrote, his elves had followed the girls here in disguise....
I had to put masks and gloves on all of them before they could enter the room and they were really happy about that. So cute, I lined them up and 'dressed' them one by one. Then my turn and I turn around and the whole nurse station are staring at the girls and telling them how adorable they are. They did look cute, masks covering their whole faces except from eyes and gloves as big as toilet seats on their hands.
We hung out with Adrian for a couple of hours and he actually had energy to walk out to the day room and watch a little bit of football with us. Seems like he has been in here forever. Can't imagine what it feels like for him.
We met a lady who's son got leukemia when he was 28 years old, 4 years ago. He has had a few transplants and found out about his last relapse the day after his twins were born. Had to go to Houston almost right away to start treatment for the transplant he had last week.
Makes me sick to my stomach hearing stories and it is just so unfair.... CANCER SUCKS! (just like it said on the girl's badge in the cafeteria)
I went by to see Aj this morning and he looked better than yesterday. The rash on his head is gone, so is the fever. But throat sores still there. Plus the WBC went up.
He is a little anemic so he got a bag of blood. The nurse told me they strip the blood that he got from components that could cause a reaction in his body. She told me the name of it but I forgot.
Also, I have never seen as many bags on his IV stand as this morning... crazy. He didn't even have this many bags during chemo! Good thing is, it is not poison in the bags. They are: IV saline fluids and all different types of antibiotics and he got benadryl to for itching.
After the visit, I took the girls, Fabby, Tommy and Alcerita (Adrian's cousin) to NASA Space Center. All I have to say is WOW! What a place!!! It was packed with people, they reckon about 7000 visitors today, we all showered and changed before we went to see Adrian tonight. :)
We all had a blast there!
Last.... I get back and put the girls to bed and I hear we have got neighbors in the hotel. Who are rather loud... They are college kids, I found out there is a game tomorrow night. Nice one!!
After a while and the girls not going to sleep, I called downstairs and let the reception know. I don't like complaining about things like this at all. Had it been Vegas - it is expected, Mariott Medical Hotel... ehhh no.
After another hour of yelling, cheering and a few of them falling on the wall, I called down and asked if they had called them and said I can change room tomorrow to avoid this tomorrow. The girl said she would send security up, I said NO! don't do that.
The girls said she would, there are too many medical guests here and it is not a 'party' hotel.
5 minutes later I hear the security knock on the door, a guy opens and security says: She has three little kids and she is complaining! (not exactly hard to spot the guest with three little kids in this hotel)
OMG!!!!! I guess that was my punishment straight from clear blue sky! What ever happened to: "SOMEONE is complaining about the noise.
Wouldn't surprise me if security is standing there pointing at my door as well (like to tell them, it is her, your neighbor on your right)!!!!
I'll be waking up with rotten tomatoes smeared on my door and glue on the door handle.
I love this hotel, but security wasn't exactly 'Smooth Operator". :) :) :)
But hat of to the college kids, they moved their party to another room. I can't hear a thing, hope they didn't move to a room next to Tommy, Fabby and Alcerita. :)
Gosh I feel old!! :) :) :)
15 min later...
Party is back on next door. It is going to be a looooooong night.....
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