Thursday, November 11, 2010
November 11, 2010 HOOK EM' HORNS!!!!
Finally some good news, first about the two donors yesterday and now - AUTO transplant today!! YEAHH!!!
Hook em' horns!!
Amira called this afternoon and she seemed a little confused as of what is going on. She was asking if we had spoken to Dr. Alousi because she had received an email from him on how to proceed.
She read it to me and it said, proceed with Auto transplant, I asked her if it meant the bone marrow was negative and she said yes. But kind of just like, aha it is...
I told her I've been waiting for that result since Friday last week!! Not sure she knows what it is like to be on the other end waiting for 'the' phone call.
Anyway, I really don't care, the bone marrow is negative - that is all that matters!!!!
We will go to Houston next week and Aj will get the next cycle of ICE there as well as conditioning afterwards. The conditioning is to free the stem cells in the body so they can be collected. Amira told me the transplant team will call us and give all the information as of when and where everything will happen.
Dr. Fayad orders the chemo and after that Transplant department takes over.
You have no idea what a relief this is, that Adrian doesn't have to take the risk and do transplant with a donor. Plus he won't have to spend 4 months in Houston. It is HUGE!
I'm so happy!!!
The "only" risk with this transplant - is the cancer could come back. He has a 50/50 shot. Those are pretty darn good odds in my eyes!!
Positive energy and thoughts everyone!!
We had Taco night with our lovely neighbors Petriks tonight. We celebrated Auto transplant and Kelli's birthday which was yesterday. Kelly brought a bottle of sparkly which we will open up this weekend I think! Celebrate every mile stone!! Thank you Petriks!!
I am going to bed to have a really good night's sleep. I am sure there are a few more that are going to sleep well after these phenomenal news!!
Ciao!
Hook em' horns!!
Amira called this afternoon and she seemed a little confused as of what is going on. She was asking if we had spoken to Dr. Alousi because she had received an email from him on how to proceed.
She read it to me and it said, proceed with Auto transplant, I asked her if it meant the bone marrow was negative and she said yes. But kind of just like, aha it is...
I told her I've been waiting for that result since Friday last week!! Not sure she knows what it is like to be on the other end waiting for 'the' phone call.
Anyway, I really don't care, the bone marrow is negative - that is all that matters!!!!
We will go to Houston next week and Aj will get the next cycle of ICE there as well as conditioning afterwards. The conditioning is to free the stem cells in the body so they can be collected. Amira told me the transplant team will call us and give all the information as of when and where everything will happen.
Dr. Fayad orders the chemo and after that Transplant department takes over.
You have no idea what a relief this is, that Adrian doesn't have to take the risk and do transplant with a donor. Plus he won't have to spend 4 months in Houston. It is HUGE!
I'm so happy!!!
The "only" risk with this transplant - is the cancer could come back. He has a 50/50 shot. Those are pretty darn good odds in my eyes!!
Positive energy and thoughts everyone!!
We had Taco night with our lovely neighbors Petriks tonight. We celebrated Auto transplant and Kelli's birthday which was yesterday. Kelly brought a bottle of sparkly which we will open up this weekend I think! Celebrate every mile stone!! Thank you Petriks!!
I am going to bed to have a really good night's sleep. I am sure there are a few more that are going to sleep well after these phenomenal news!!
Ciao!
News
The bone marrow is negative !!!!!!!!!!!!!!!!!!! Yeahhhhhhhhhhhhhhh!!!!!!!!!!
Auto transplant it is!!!!!!!!!!!!!!!!!!!!! Woohoo!!!!
Catia
Wednesday, November 10, 2010
October 10, 2010
At last we had some news... Just hoping that we won't need the donors at all. It is just nice to know that there are two donors who are a perfect match.
Now, we continue the wait for results of bone marrow biopsy! No word from Dr. Fayad as of yet. I found out from Michelle that Dr. Alousi is out this week. She was going to email him and tell him about the donors and ask how he wants to proceed. Michelle said she will call me as soon as she has any info.
We cleaned out the garage out yesterday, or my dad did :). I looked at Sienna's bike with the training wheels and thought, I'll be darned, she is going to learn.
I took off the training wheels and ran behind the bike holding on to the saddle. Up and down the street. Back and forth.
Today after school, she went and got the bike out, I lowered the saddle enough for her to put both feet down and off she went. After a couple of minutes she was riding up and down like a pro!!!!! Never thought it would be that easy to teach her!
Now, we continue the wait for results of bone marrow biopsy! No word from Dr. Fayad as of yet. I found out from Michelle that Dr. Alousi is out this week. She was going to email him and tell him about the donors and ask how he wants to proceed. Michelle said she will call me as soon as she has any info.
We cleaned out the garage out yesterday, or my dad did :). I looked at Sienna's bike with the training wheels and thought, I'll be darned, she is going to learn.
I took off the training wheels and ran behind the bike holding on to the saddle. Up and down the street. Back and forth.
Today after school, she went and got the bike out, I lowered the saddle enough for her to put both feet down and off she went. After a couple of minutes she was riding up and down like a pro!!!!! Never thought it would be that easy to teach her!
News!
I just heard from Michelle, Dr. Alousi's coordinator. Today, they confirmed 2 PERFECT matches for Adrian !!!!!!!!!!!!!!
Not one, but TWO and they are both perfect!!!!! 10/10!!!!!!!!!
Catia James
Tuesday, November 9, 2010
Monday, November 8, 2010
November 8, 2010 No news
We haven't heard anything from MD Anderson yet. I emailed them and asked about the biopsy and the pathology people aren't done yet. Same for the donor search, I have left them a message to see if they have found someone.
I read the report on the My MD Anderson page yesterday. It is a personal page that MD A uses to communicate with patients and other doctors. The report I read was Dr. Alousi's from last week and it did say that they had found a potential donor. It made me very curios to find out about it when I read it.
Hopefully tomorrow will bring some news of some kind about transplant and when next chemo will be.
Mom & Dad flew in last night, I kept them waiting for an extra 20 minutes when they arrived. I was waiting and waiting, laid down in bed to watch TV and fell asleep. I woke up at 11.05 PM, exactly when they were supposed to land. Drove to the airport in PJ and robe as fast as I dared to drive, figured it wouldn't have been a pretty sight for a policeman if he had to stop me. Got to the airport and found out they had landed 30 min early!!!
It is all good though, dad was up at 6 am ready to make Mannagrynsgrot (Swedish Porridge) for the girls. It has become a tradition now. They bring 10 packets of mannagryn and dad makes it every morning.
Good night...
I read the report on the My MD Anderson page yesterday. It is a personal page that MD A uses to communicate with patients and other doctors. The report I read was Dr. Alousi's from last week and it did say that they had found a potential donor. It made me very curios to find out about it when I read it.
Hopefully tomorrow will bring some news of some kind about transplant and when next chemo will be.
Mom & Dad flew in last night, I kept them waiting for an extra 20 minutes when they arrived. I was waiting and waiting, laid down in bed to watch TV and fell asleep. I woke up at 11.05 PM, exactly when they were supposed to land. Drove to the airport in PJ and robe as fast as I dared to drive, figured it wouldn't have been a pretty sight for a policeman if he had to stop me. Got to the airport and found out they had landed 30 min early!!!
It is all good though, dad was up at 6 am ready to make Mannagrynsgrot (Swedish Porridge) for the girls. It has become a tradition now. They bring 10 packets of mannagryn and dad makes it every morning.
Good night...
Sunday, November 7, 2010
Saturday, November 6, 2010
October 6, 2010 Cooooooold in Austin!!
Didn't really see it coming but it got cold this week! The week has flown by, I think because Annelie and Emma has been around. Tomorrow night my parents fly in from Sweden!! YEAY!! The are going to celebrate dad's birthday in Hawaii. :)
We haven't heard anything yet from MD Anderson. It will most likely be on Monday or latest Tuesday, when we meet with Dr. Fayad. I think we will find out when the next chemo is due as well.
I will call on Monday to see how the bone marrow donor search is going. They said it takes about 10 days from when they do the blood test to find out if they are a match or not. I would think the first 5 people they tested are done by now.
Other than that Adrian is feeling great, looking great! His head is really shiny, he joked that he got it waxed. But it looks good though.
I looked at the statistics of the blog tonight and look, someone in India is reading it! Who is that??? A native living there or someone visiting? I am just really curious, I don't know anyone who is traveling there right now. Who are you :) :) ??
Also Germany and Netherlands!? Could be someone traveling of course, never know.
Oh, I went to the farmers market this morning. I have watched the movie Food Inc. and it made me never want to eat corn fed cows or chicken again. If you haven't seen it, do it and you will go to farmers market too.
I got grass fed beef from this lady who has a farm just outside Austin yesterday. Today I got eggs, baby kale, milk and chicken. (Kelli, I have chicken and beef in the freezer for you!!) Will let you all know if there is any difference in taste or quality.
Our farmers markets here in Austin are really good, also we are blessed with Whole Foods where we can get pretty much everything organic. I like when we can honor local farmers, to buy their stuff.
I am off to watch 'Girl who played with fire' - the second movie of the Swedish Millenium Triology by Stieg Larsen.
Ciao!
We haven't heard anything yet from MD Anderson. It will most likely be on Monday or latest Tuesday, when we meet with Dr. Fayad. I think we will find out when the next chemo is due as well.
I will call on Monday to see how the bone marrow donor search is going. They said it takes about 10 days from when they do the blood test to find out if they are a match or not. I would think the first 5 people they tested are done by now.
Other than that Adrian is feeling great, looking great! His head is really shiny, he joked that he got it waxed. But it looks good though.
I looked at the statistics of the blog tonight and look, someone in India is reading it! Who is that??? A native living there or someone visiting? I am just really curious, I don't know anyone who is traveling there right now. Who are you :) :) ??
Also Germany and Netherlands!? Could be someone traveling of course, never know.
|
Oh, I went to the farmers market this morning. I have watched the movie Food Inc. and it made me never want to eat corn fed cows or chicken again. If you haven't seen it, do it and you will go to farmers market too.
I got grass fed beef from this lady who has a farm just outside Austin yesterday. Today I got eggs, baby kale, milk and chicken. (Kelli, I have chicken and beef in the freezer for you!!) Will let you all know if there is any difference in taste or quality.
Our farmers markets here in Austin are really good, also we are blessed with Whole Foods where we can get pretty much everything organic. I like when we can honor local farmers, to buy their stuff.
I am off to watch 'Girl who played with fire' - the second movie of the Swedish Millenium Triology by Stieg Larsen.
Ciao!
Wednesday, November 3, 2010
Nov. 3, 2010 Back from Houston
Adrian is back from Houston no wiser than when he left. He did the bone marrow biopsy yesterday and met with Dr. Alousi today.
Of course Dr. A said that he has to see the results of the biopsy before he can proceed... GWAHHHH!!! I only emailed his nurses 3 times last week, asking if we shouldn't wait for the biopsy results.
Oh well....
We will go to see Dr. Fayad next week and he will be able to read the slides from biopsy. Dr. A told Adrian today, it is up to the results of the biopsy as of which transplant he will need.
If its clean - auto if not - allo. Clean meaning no cancer at all in his bone marrow.
Keep your fingers crossed!!!!!!!
Of course Dr. A said that he has to see the results of the biopsy before he can proceed... GWAHHHH!!! I only emailed his nurses 3 times last week, asking if we shouldn't wait for the biopsy results.
Oh well....
We will go to see Dr. Fayad next week and he will be able to read the slides from biopsy. Dr. A told Adrian today, it is up to the results of the biopsy as of which transplant he will need.
If its clean - auto if not - allo. Clean meaning no cancer at all in his bone marrow.
Keep your fingers crossed!!!!!!!
November 3, 2010 Nala - Article
This is a really sad article that I came across yesterday. It is about a girl who passed away last week. But I think it really speaks for itself. It is so easy to become a bone marrow donor, 15 minutes of your time to register and then 2 min to do the swabs. You could save a life!
Nala - article
If you want to be a donor, go to this website and register!
Bone Marrow Donor
Nala - article
If you want to be a donor, go to this website and register!
Bone Marrow Donor
Monday, November 1, 2010
November 1st. 2010
We had the best Halloween ever!!!
This is what Chloe told me on the way to school this morning:
Mamma, can we never ever ever leave this street? It is the best street in the whole world!
It was really sweet, the whole street met down on one cul de sac and there was a potluck party. Everyone were there, then the kids went on a hay ride to the end of the street and started trick or treating. (Olivia says prick or preating)
At the end of the street they had a margarita machine for the grown ups and the kids ate their candy. It was a great night!
Adrian drove down to Houston this morning, he had business meeting all day today. Tomorrow he will go and do the bone marrow biopsy and on Wednesday meet with Dr. Alousi. He doesn't have to do the CT and PET scan again, we managed to get the CD and the written report and sent it down there. They came back clear after the first dose of ICE so there is no reason to do them again.
This is what Chloe told me on the way to school this morning:
Mamma, can we never ever ever leave this street? It is the best street in the whole world!
It was really sweet, the whole street met down on one cul de sac and there was a potluck party. Everyone were there, then the kids went on a hay ride to the end of the street and started trick or treating. (Olivia says prick or preating)
At the end of the street they had a margarita machine for the grown ups and the kids ate their candy. It was a great night!
Adrian drove down to Houston this morning, he had business meeting all day today. Tomorrow he will go and do the bone marrow biopsy and on Wednesday meet with Dr. Alousi. He doesn't have to do the CT and PET scan again, we managed to get the CD and the written report and sent it down there. They came back clear after the first dose of ICE so there is no reason to do them again.
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